Above all,
there's a chance.
Neonatal Marfan syndrome (also called early-onset or infantile Marfan syndrome) is a term used to designate a severe presentation of Marfan syndrome that is evident in early infancy and shows rapid progression during infancy and childhood.
Outdated research and information can lead to misdiagnosis and incorrect assumptions about the quality of life and survival rates. But here, there is help and hope.
Neonatal Marfan:
Inspiring Stories of Love
Every child's journey with neonatal Marfan syndrome (also known as early-onset or infantile Marfan syndrome) is unique. Here, we share stories of hope and resilience, celebrating the lives of those who are thriving, and honoring the memories of those we have lost. These are real stories of love, strength, and the beauty of the human spirit.
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"I don't know what lies around the bend, but I'm going to believe that the best does." - L. M. Montgomery
